Dying Patients With Rare Diseases Struggle to Get Experimental Therapies

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Dying Patients With Rare Diseases Struggle to Get Experimental Therapies Dying Patients With Rare Diseases Struggle to Get Experimental Therapies

At 15, Autumn Fuernisen is dying. She was diagnosed at age 11 with a rare degenerative brain disorder that has no known cure or way to slow it down: juvenile-onset Huntington’s disease. “There’s lots of things that she used to be able to do just fine,” said her mom, Londen Tabor, who lives with her […] The post Dying Patients With Rare Diseases Struggle to Get Experimental Therapies first..
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